Evan's Seizures

Evan gave us quite a scare a few weeks ago.  He had a seizure (his first) on May 7, right after I had put him to bed.  I stagger the times I put the boys to bed by a few minutes.  I had put Evan down first and about 15 minutes later put Tommy to bed.  It was dark in the room but something made me look over at Evan as I was tucking Tommy in. I noticed his blankets moving.  I walked over to check him and as I lifted the blanket I realized his right arm and leg were twitching.  His eyes were fixed straight ahead.  I scooped him up and ran down to the kitchen.  I grabbed the phone on the way and called 911.  As I was talking to them he stopped.  Sadly, Tommy woke up immediately and watched it all.  Thankfully Luc was home in his room and came immediately when I called him.  Chris was working ground here at home.  Luc called him and he came up quickly.  The ambulance finally arrived and by then Evan was getting better.  He initially couldn't put any weight on his right leg or move his right arm, which made me think he had had a stroke.  I have since found out that it is not uncommon for that to happen after a seizure and it's only temporary.

After a very bumpy ride to the ER at Windsor Regional, Evan had improved greatly.  We were initially examined by the ER doctor and then the Paediatric Resident on call.  Their concern was the function of his shunt so we were admitted and were awaiting tests in the morning.  We were finally settled in around 2:30 am.  That's about the same time the enormity of the situation hit me.  Evan went for a head CT the next day and it was determined that his shunt was functioning as it should be.  There was no definite diagnosis for the seizure but they were still leaning towards the hydrocephalus.

We were referred to Dr. Gangam (Paediatric Neurologist) and released.

We followed up with Dr. Morgan as we weren't due to see the specialist for several weeks and everything looked good.  Unfortunately he had another on the long weekend (May 19, Victoria Day Holiday).  Luckily Dr. Morgan was on call that day and re-assured me that he would be ok.  We finally saw Dr. Gangam and seizure meds were prescribed.  I am still undecided as to whether or not I want to start him on them.  I need to research!